Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Monday, October 11, 2010

Tomorrow



Tomorrow is our big day. The day I've been waiting for for a long time. We got down here this afternoon and since the weather was so nice we thought we'd go for a walk and do a little exploring. We felt a little out of place on the U Campus on a Monday afternoon pushing a baby in a stroller! :)

We walked a few blocks and I showed Brian the building that Kara's clinic was in and then we walked around the corner to the Children's Hospital and inside just to get a feel for things in things in the morning. I think I'm ready for this but I feel like I can't be prepared enough.

After that we were clueless as to what we were going to do in downtime Minneapolis with the baby and we needed to eat so we went to visit Auntie Laura and Lily for some playtime and supper for Mom and Dad. We chatted on the phone with Brenna a few times - she misses us but she's been busy. She was a little jealous when she found out that Kara got to see Cousin Lily and she didn't but she gets to stay at Nanny and Grandpa's and there's nothing better than that!

We check in at 7:30 tomorrow morning. We've gotten the bath off of our checklist so far and Kara is playing happily right now. We have the prep to do yet...Ugh. Not sure how or when we are going to go about that. I'm putting it off! She can have a bottle up until 3:30 this morning so I'm hoping she'll wake up and drink one so we don't have a mega-meltdown in the morning.

Procedure time is 9:30 and they said to allow one hour, twenty minutes. We won't know much until all the biopsies come back which I'm assuming could be a few weeks but I think we should get a few answers tomorrow - inflammation, how much, things like that...
Til then, I'm going to sit back and try and relax. I have a feeling it's going to be a long night and an even longer day tomorrow.

4 comments:

  1. Good Luck! I will be thinking of you guys tomorrow!

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  2. We'll be thinking of you, prayers with you for strength...everything will go ok and it will be over before you know it and you will feel SOOOO much better having it behind you! Hope you get some rest tonight!

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  3. Good luck let me know how it goes. And joy is right you will all do just fine. *hugs for all of you!

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  4. You should have the biopsy results in a few days. Maijas came back quickly. I wish I knew you were coming. I could have come and seen you.

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