Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Tuesday, October 5, 2010

Control

I can't seem to get control over Kara's symptoms lately. I think we may have pushed our last few food trials a little too quick. Kara got home from daycare today and was so out of sorts - we had numerous meltdowns and then in bed at 7:00. She's thrown me for a loop - a nasty diaper one day and the next, just fine with no rhyme or reason to what's going on. I'm thinking I need to cut back a few steps and start over, a little more closely and slowly.
One week from today her scope will be over with. At this point, I'm sure it's going to show inflammation of some sort. She's been a mess! Her skin is usually a telltale sign of some sort of reaction coming up and she has new eczema patches coming up daily that I can't seem to get a handle on. I'd worry a little more but with the scope so close I'm more and more anxious for answers. This sugar intolerance is more of a pain to deal with than the FPIES is because it's just more guessing games and we have enough of those!!
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