Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Thursday, October 14, 2010

Time To Go Home!

We had a team of doctors come in throughout the morning and it was determined that Kara could be discharged with a follow up with her primary doctor this week. Our GI's partner was the main one seeing us that day. She had thought Kara was maybe given propofol which contains egg. She said stay far, far away from egg. I went over how her allergies aren't IgE and she'd had RAST testing and prick testing that all turned up negative for egg. She went back to read the operative report to see if her new set of eyes could figure out this strange reaction. She came back stating Kara wasn't even given propofol - all the drugs she had were really only mixed with saline so nothing was adding up.

Even though we got the ok to discharge that morning, it was almost noon before all the paperwork was finally completed so we could get the heck out of there. Kara was completely back to her normal self, and bouncing off the walls. She found it fun to climb up on the long window ledge and then realized it was even more fun to "slide" off it onto the cot below. If we didn't get out of there soon, we'd be there longer for a broken arm, or something worse! Her heart rate slowed as the morning went on and her swelling had gone down enough to get her shoes on. She was back, thank GOD!

As I went through all the discharge paperwork with the nurse, Kara and Brian took off to go to the parking garage to get the car. By the time I met them outside the hospital, Kara was already asleep and she slept until we were less than an hour from home. We couldn't have asked for a better trip than that!

She was SO happy to be home. We were ALL so glad to be home! My Grandparents, who had Brenna through all of this, had taken her to daycare that morning because she wanted to go and because she needed some normalcy in this mess. They were going to pick her up at her normal 3:00 pickup and bring her home for us, and to see Kara. Brenna and Kara's reunion was amazing. I wanted to cry again! They have such a close bond, Brenna is a little Mama and was SO worried about her sister. They hugged, kissed, hugged some more, laughed, and then just played and played. It was reassuring to see Kara so happy after what she'd been through in the last 36 hours!

We had Grandma's come visit last night to give hugs to Kara and to see for themselves that she was doing much better and Kara was so wiped out she was in bed by 7:00! She must have loved being back in her crib too - she slept until 6:30 this morning, not a peep!

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