Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Friday, October 15, 2010

Follow Up

We had Kara's follow up appointment with her primary doctor on Thursday morning. We went over, in detail everything that happened to Kara while they were looking for the paper work that the U had faxed in. Dr. M got the paperwork and the diagnosis was "adverse reaction to anesthesia". A lot that tells us... :)

She reviewed the operative report, the drugs given, all the notes from the residents and looked up reactions to each of the medications Kara was given. She was fairly certain that Kara had an allergic reaction to the Fentanyl based on the time line of reactions and her symptoms - tachycardia, edema, flushed skin, and the fact that her EKG was normal (other than the tachycardia) and that her swelling had gotten better. She said we need to stay far, far away from Fentanyl and added it the ever-expanding list of allergies.

She is questioning some sort of congenital heart problem so she's having the U review the EKG again with some additional information and she may possibly have to have another EKG done again. This is nothing to worry about for the time being - nothing too serious.

We were thinking we'd hear on some of the biopsy results today but I never received a phone call. Hopefully Monday we'll get those results back. These are the ones that we are pretty sure are all going to be negative but it will be nice to have so many things ruled out. We have a follow up appointment with Dr. S (GI) in one month, follow up with our primary in one month and I suppose now that she had this allergic reaction, I'll have to update our allergist and see what his thoughts are - if she should be seen for that.

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