Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Thursday, October 21, 2010

A Bump

At our follow up appointment with Kara's primary last week, we discussed Kara's EKG and tachycardia at length. The doctor was going to talk with the doctor from the U to have them review the EGK again, looking at something called the QT Interval. There is some family history of Long QT Syndrome, so she wanted close attention paid to this to see if it's something Kara could have, which would help explain the tachycardia.

Monday night, while making supper, I got a phone call - it came up as "clinic" which had me puzzled. I couldn't think of why they'd be calling me. It was the nurse. "The doctors discussed Kara's reaction and EKG and determined that the QT interval wasn't clear enough to make a determination either way so they decided they want the EKG done again. BUT, since it has to be read by a pediatric cardiologist anyway, they discussed it further and want her to have a pediatric cardiology consult.

Damn. We are getting hit on all sides here. Now we are waiting for paperwork to be turned in to St. Cloud Cardiology so they can review, send us a holter monitor for her to wear for a few days to get some more results and then get an appointment.

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