Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Wednesday, October 13, 2010

The Procedure

Brian and I went to find some breakfast up at the cafeteria. We ordered our food and sat down to eat. I was pretty much at ease but as I watched the clock I got anxious to get back. We had just got checked in in the waiting room and hadn't even sat down yet and Dr. S. was out to talk to us! She told us that the procedure went wonderful. Kara slept until they laid her on the OR table, where her eyes popped open but they had the gas ready so she went right back to sleep, only this time, REALLY slept! They started her IV once she was sleeping so she had no trauma from that. My poor baby has my wonderful veins - 3 pokes for an IV start, and she was already sleeping! Dr. S. said that everything looked really good - no obvious ulcers, polyps, anything out of the ordinary but stressed that that was by the naked eye. They took quite a few biopsies and we won't know anything until those come back. She will be giving me a call on Friday, hopefully to discuss those results. The dissacharride biopsies take a little longer (and that is the most important one at this point!) so hopefully by mid week she'll be calling us about that one. She said they should be out soon - it was going to take longer than normal because of the intubation and as soon as she woke up they would get us right back to be with her.

Brian and I sat down and chatted about the findings and within minutes they called us back. We walked in the door and I could hear my baby crying! I was prepared - both from what the nurses and anesthesiologist had told us and from going through anesthesia with Brenna last year with her tonsils and adenoids. Kara was being held by one of the nurses and spotted me and came right to me. I tried to settle her but she was having nothing of it. He said sometimes they are just extremely agitated. I remember her heart rate being around 200 - he explained that it was because she was so worked up. They brought a rocking chair in and I tried to get her settled. Finally they decided to give her some fentanyl because she just couldn't seem to relax! I remember thinking "good, this will relax her enough to take a little nap and hopefully wake up a little more calm." The fentanyl stopped the constant crying (because of being intubated she was so hoarse, her cry sounded so painful!) but she still didn't seem to be "at ease". We were in phase one of recovery for quite a while trying to get her to settle and watch her blood pressure (it was running pretty high) and her pulse. Nothing seemed to out of the ordinary at this point for a baby coming out of anesthesia - the nurse told me she was on the higher end of the spectrum of babies being agitated though.

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