Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Tuesday, November 2, 2010

A Scare

We had a scare last night, horrible flash backs of Kara's vomitting til shock reactions. We decided to trial apple in the form of a splash of apple juice in her sippy full of water. Kara was in heaven! Something besides plain, old, boring water! She sucked it down, ate a wonderful supper and was happy!

A short time after supper, Brian was working at the table and Kara needed to be up to see what he was doing. We put her in the high chair and gave her some bran flakes, hoping to get a little more food in her before going to bed. Suddenly she started coughing and gagging. We quick pulled her out of the high chair, the tray and the bran flakes falling to the floor. I held her over my arm, on her tummy as she gagged and gagged. She ended up throwing up a small amount. It was deja vu, Brenna stood there in horror watching until Brian asked her (our BEST helper!) if she would get the broom and clean up the mess. She cleaned it all up while we kept working on figuring out if Kara was ok or not. I was terrrified, Kara was crying in between gagging and Brian and I stared at each other wondering what the heck was happening, praying it wasn't a reaction.

A short time later, she was over it and running around, playing. We are sure now that she just simply choked on one of the flakes. (Simply choked. No big deal, only in the FPIES world where you'd rather have them be choking versus having a reaction to something...there's something wrong with this!) She was happy the rest of the evening, and slept all night. I'm going to proceed with the apples, slowly and cautiously. After that scare, I'm not wanting to experience another reaction or near-reaction anytime soon, or ever again for that matter!

4 comments:

  1. oh my...simply choked.....the irony!

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  2. I can't even begin to imagine how scary that was for you guys! glad to hear you are all ok!

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  3. oh, thank goodness- she "only" choked!! Whew, can you hear my sigh of relief? But yes- again, there is something disturbing about saying, "thank goodness she was "just" choking!"! Go Apples, Go Kara!! :)

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  4. I'm with everyone else, it's sad that we all feel 'only choked' is better than a reaction! We're cheering you on for apples - pureed, freeze dried and cooked we love them here!

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