Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Saturday, November 13, 2010

Samples!

Our allergist gave us a prescription for some new, flavored Neocate drinks back in September when we were there. I had been reluctant to fill it because it's expensive and we already have 3 unopened cans of the chocolate flavored Neocate that I paid $150.00 for and she won't touch it! Even though the insurance pays for some of it now, we still have to pay out of pocket quite a bit so I've kept the prescription at home, waiting for a desperate time to get it filled.

In the meantime, I was exploring the Neocate website one day and decided to email the company to ask about the other Neocate products. I explained Kara's FPIES and how she is thriving on Neocate but there are days where she is bored with the flavor and we don't have a backup plan if that were to become the norm.

I promptly got a reply back from a rep explaining the different products and letting me know that he needed my address, phone number and Dr.'s name to send a box of samples to us. How awesome is that?! I had asked Dr. Helm when we were at his office if he had samples and he said he rarely gets them so he had nothing. The Neocate Rep let me know that they'd be sending sufficient amounts of samples to his office as well.

On Tuesday, the UPS truck pulled in the driveway and delivered a box. In this box was a whole can of Neocate Tropical, a few packages of flavor straws to put in her Neocate, two boxes of the E28 Splash Juice Boxes, a bag of probably 20 flavor packs and 3 packs of Nutra. I'm not sure that we need Nutra or what to even do with it, but we got it!

That night for dinner, I mixed up some Neocate Tropical and put it in a sippy. Kara took a drink and actually liked it. Prior to this, the only way she'd drink her Neocate is out of a bottle, making me think that she's goign to be on the bottle until she's 5! She'll drink water out of a sippy just fine but won't touch her formula in it. This gives me hope, so the rest of the week we gave her a sippy of Tropical for supper.

This morning Brian is out hunting and I'm dealing with a fussy, out of sorts baby again. I remembered that I wanted to blog about our box of goodies and that made me wonder if a special juice box that's just for her would redirect her enough to be somewhat happy. She was so excited to have one of her own! Brenna gets juice boxes at Grandma's once in a while but Kara hasn't been able to have one. This is finally making her happy. She comes to take a sip, goes to play, comes to take a sip. Sometimes a little re-direction is all a person needs!

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