Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Wednesday, November 10, 2010

Good Week

Our apple week went well. Thursday night I had plans to start a new food Friday morning, beginning to get braver, giving her something she's never had before. All of our food trials so far have been foods that she'd had as a baby but this was when we had no baseline. I've felt fairly comfortable with our trials to this point but now things are going to start getting interesting. Lots more research on foods, lots more anxiety, lots more sleepless nights, I'm sure.

Thursday night I was talking to Brian who was going deer hunting all weekend. Friday morning I made the decision that the girls and I were going to go out of town to have a little fun on our own, putting all food trials aside since she has been doing so well. I'd been wanting to do this for months now but things never quite worked out with our schedules and Kara feeling well enough for me to be comfortable traveling very far from home.

We traveled about three hours south to visit my aunt and her family. Her girls LOVE my babies so what could be better? Time away from home visiting family, good entertainment for the girls (who knew grocery shopping could be so exciting!) and lots of R & R for the Mamma. Travel is a bit difficult - I had to pack her food for the next couple of days and we were going to be in the car during lunch time so I packed an extra bottle, a banana (which was MESSY!) and her "snacky" foods. I couldn't just get her a lunchable like I did for Brenna, or stop at the drive thru - there are NO foods on those menus that she can tolerate!

We had a wonderful time and now I'm procrastinating starting anything else. It's been a crazy week and we've all been tired, plus we have a decent menu right now that she's not tired of yet. Maybe tomorrow...

For now, here is a pic of our grocery shopping maniac. The fuzzy quality is because she was running. Thankfully, we don't have these carts here at home!

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