Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Tuesday, November 16, 2010

Re: Appointments

Re: Allergy Follow-Up
Why does it take over a month to get an appointment with one specialist and when you call for the follow-up, hoping to get in before the end of the year, they tell you that they have not one, but three openings two days away? Don't get me wrong, that's great but I was really shocked - oh, Wednesday? Ok, yeah, that will work...

Re: GI Follow-Up
GI Follow-Up was to be made one month after the procedure. First available at our appointment site? January 6th, almost three months later. First available at main appointment site? January 5th. I think we have the wrong doctor if it's going to take that long to get in to see her, for an appointment she requested. Leaving a third message with the nurse to fit us in resulted in an appointment on December 15th. I think this is our last chance with her, if we need additional GI after this, we'll switch to Children's, where her other care is.

Re: All appointments
I think I've got all of Kara's appointments set up now before the end of the year. We'll be travelling quite a bit so hopefully the weather will cooperate. GI, Allergy, Cardiology and an 18 month "well" child exam (ha!) all in the next two months.
Oh, and we've got November's order of formula on the way so I just have to remember to order Decembers before it's too late. We've got quite the stock pile but since we've met our out of pocket, a stock is just fine with me! :)
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