Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Monday, November 1, 2010

More Tests...

I got the phone call from St. Cloud Hospital Cardiology on Friday afternoon that the Peds Cardiologist wanted Kara to have wear a 24 hour holter monitor before her appointment. We also set the appointment up - it's not til the end of November though!

I thought I was Super Mom and headed up to the hospital to get this done. Kara on my hip, Brenna trailing behind. I gave Brenna the pep-talk - Kara has to have a test done, they are going to put stickers all over her chest and hook up a box to it. She's probably going to cry because she's going to be mad but they will not be hurting her. I need you to be a really big girl and my big helper. She was game. She loves being my helper. Note to self, even Super Mom can't handle situations like this, trucking through the hospital with a 20 pounder on your hip, a diaper bag, 3 jackets and a pokey 3 year old in boots.

Kara screamed and fought while the two medics hooked her all up. Brenna stayed busy playing her games on my phone for a little while but the more worked up Kara got, the more upset Brenna got. It finally ended in Brenna standing next to the bed crying as well, so I ended up holding Brenna so she could see, while the two paramedics worked on hooking Kara up, taping her up, and getting it all straightened out. Kara was terrified. When we sat her up and she looked down, the waterworks really started! Poor baby!

One of the girls asked me if I'd noticed any tachycardia and I told her there were a few times that her chest was pounding but it was so fast there was no way I could take her pulse. She said she was trucking along pretty good once they got everything hooked up. I really hope this comes up with nothing!

The name of the game for the next 24 hours was Operation: Distraction. We did anything and everything we could to keep her mind off the fact that she had all those leads taped to her chest (tape from neck to mid belly, and from side to side!) and then a box hanging from it. Remember, Kara has extremely sensitive skin, so she was NOT pleased about all of this.

24 hours and five minutes later, we were back at the hospital to get that thing off! Once again, the sight of it made her cry but when she was done, she hopped down, and said "all done!" and headed for the door. She couldn't be happier! The paramedic said they'd download it and if there was anything critical they'd call us back up there immediately. We've heard nothing and no news is good news!

2 comments:

  1. oooh. Poor babies and poor mama! No news is good news...hope that continues! I can't do any appointment for Ellie with my older daughter at this point because she is too emotional as well. You are a trooper mama! Thanks for the update!

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  2. oh man....hopefully it will show that she is great! I can swap stories for hours about crazy doctor, hospital, lab visits with my two. They are best friends and don't like it when the other is hurting. (they are 12 months 3 days apart). How about when they were checking Nolan for a UTI and Lily was in for a double ear infection....the screaming causing Lily to scream & they both wanted to be held....we were at the office for THREE hours. If you need to feel like you aren't alone and a good laugh....i'll tell you more. Regardless I feel for you!!!

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