Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Saturday, July 17, 2010

New Hurdles

With the news that the insurance company would cover Kara's formula at 80% we felt like we could tackle anything. I got on the phone over a week ago to get the formula ordered. It needed to be ordered through a medical supply store.

I contacted a med supply store to have them order it. I was told they don't 'do' formulas. Strike One.

I contacted another med supply store to have them order it. I was told they won't do it because the insurance companies allowed amounts are less than what they have to pay for it so they lose money. Strike Two.

I got on the phone with the insurance company again, the same gal I had been working with. She gave me the names of four more to call - two more in Brainerd, one in Little Falls and one in Milaca.

The third one in Brainerd didn't handle formulas and the fourth one was going to look into it. I called Milaca, they were going to look into it as well. I didn't bother with Little Falls, figuring it would be the same exact story.

After many, many phone calls back and forth between my insurance company and North Central Medical Supply in Brainerd I finally got the formula TODAY. EIGHT DAYS LATER. The people I worked with were great but this was a major stress that we shouldn't have had to go through the way we did. Anyway, I got eight cases of Neocate Jr today, 32 cans of formula. This should last about one month. Price: approximately $2,200.00. We'll see what the insurance company does with this.

Next month should be a breeze.

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