Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Wednesday, July 21, 2010

Another Reaction?

Brian's Grandma made me a pot of soup for Kara after the possible hives reaction to the Cambells Vegetable. All it has in it is peas, carrots, celery, potatos and a little bit of chicken, along with chicken broth. I froze some and she's had some for supper the last two nights. I was really thinking this was going to be safe for her but the last two nights Kara has been really fussy starting around 7:00 which would be two hours after eating supper. This fussiness has lasted about 2-3 hours and both nights was followed by a nasty diaper. I'm thinking this is another FPIES reaction and all I can figure out is that it may be from the chicken. She had a minimal amount - 3 little bites, maybe and hadn't really had chicken before since all the baby food chicken had rice flour in it. I don't know what our next step is, other than wait for our specialist appointments.

Tonight I put her in the high chair for supper and put her plate on the tray. She looked at it, closed her eyes and started shaking her head, like "no way am I going to eat!" She nibbled a few bites of bread and a few bites of fruit but flat out refused everythign else. Before bed she took a bottle and went to bed just fine, no tummy aches. I'm sure we'll be up at 2 a.m. with a starving baby!

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