Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Monday, July 26, 2010

Just When Things Were Going OK...

As we were getting ready for our busy Monday morning, I had to stop and change a diaper right before we walked out the door. Typical, I pretty much come to expect this each and every morning. As I was walking Kara downstairs to daycare I got a whiff of a really foul smell, only to find that she had another icky diaper. I gave the report of how her bottom is raw but she seemed to be OK and went on with my day. Brian called me mid morning to let me know that he talked to our daycare gal and she'd had a few more icky ones. I brushed it off as nothing and went about my busy day. Shortly after that something clicked and I remembered how quickly my poor baby gets dehydrated from these episodes and what happens when that's the case. I panicked and called daycare myself only to hear Kara crying in the background and was told that she just had another one. Her bottom is AWFUL. I assured her that I'd be there right away to get her, the sound of Kara crying and the thoughts of IV sticks, fluids, the whole works scared me to death. I quick gave out a report to a co-worker, nearly teary eyed and was running out of there to get my poor baby.

Kara was fine when I got there so that relieved me some and I realized how much I overreacted once I got home only to have her cautiously walking across the room, chit-chatting with herself along the way. She went down for a good nap and I was thinking maybe it was a fluke thing. She just woke up now and is having her bottle, but we did have another icky diaper. Damn.

I have a call in to her doctor to see if/when we should start her on medication. I know she can have some immodium and/or zofran but it's only to be used in extreme cases. I don't quite know what extreme is at this point, we've been through it all.

Wish us luck!

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