Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Tuesday, July 6, 2010

Getting By

In the days following we very slowly and very cautiously started trying more foods with Kara, scared out of our minds. We found she was able to tolerate wheat and barley just fine. She was also able to tolerate bananas, applesauce and pears; carrots, sweet potatoes and peas. I think we stuck with this diet for quite a while because it was simple enough and it was safe.

We ended up seeing her family doctor for one reason or another shortly after her gastro appointment. I asked what our next plan was. We decided that it was probably not necessary to see the gastro doctor at one year since we didn't gain anything by seeing him in the first place and that at one year we'd go see an allergist instead and go from there. We had our safe foods list and just worked on getting Kara to get other nutrition other than breast milk alone.

In the next few months Kara had quite a few episodes of dehydration. It seemed that as soon as she got sick, she was down for the count. We had a few times where she required IV fluids and getting an IV started on her was a horrible battle! She also had random episodes of vomiting and diarrhea but we were never able to pin point exactly what caused it or what she had to eat. We just hung in there waiting for her to hit that one year mark so we could go for additional testing to figure out what was wrong with our poor baby!

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