Thoughts

I belong to a group of really great Moms of babies with FPIES. These women have been my crutch, my healing, my everything in these last few months of Kara's FPIES. They all understand what I, what Kara, what our family, is going through. We ask for and give advice, we vent, we share our progress and our failures. We started as perfect strangers and though most of us have never met, we have formed a tight bond.

I've struggled with blogging lately. I've had numerous posts started but haven't been comfortable enough with them to post. I've been through a lot in the last few weeks and I've been struggling. We don't have it as bad as some do - my baby can eat, although a very limited amount of foods. I've been struggling with her refusal of foods, the constant guessing of whether or not she is beginning to react, the battle of trying to get her to drink her bottles and most importantly the balance of a "normal life" and an "fpies life". I'm trying to get grounded and get things figured out. We had Kara's pre-op today and a visit with her family doctor may have been just what I needed to get back to reality.

We have twelve days until Kara's surgery. Twelve more days and then the days of waiting for biopsy results for some answers and rule outs to what all Kara has going on. I have to make it that long and then hopefully we can get the "show on the road" as far as a plan and how to go about these food trials a little more successfully.