Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Sunday, September 19, 2010

Good Things Run in Threes

We have now had our third food trial pass in a row! Kara is doing amazing!

We passed potatoes, green beens and beef. We are now doing a small trial of tomato to give that ground beef and corn pasta some flavor. She has her own little hotdish and loves it!

I'm so glad we are getting some more safe foods in Kara's diet. She's really become quite bored with everything. It's a daily struggle to get her to drink her bottle. She's only been drinking about half of what she should be to maintain! I'm worried she's going to start losing weight with how active she's become versus the lack of formula she's drinking. I was blaming it on teeth but now I think she's just sick of it. I've given it to her in every different sippy imaginable when she pushes the bottle away but still, no luck. I'm feeding her every chance I get!

With how well she's been doing lately, it's hard to remember where we were a a month ago with the pear fail. She's come so far. I do anticipate that we will run into more "pear fail situations", it's a given, really, and I will be prepared as always but for now it's sure nice to see who our KARA really is!

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