Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Thursday, September 9, 2010

GI Appt

We went down to the U of M yesterday for Kara's GI follow up appointment. Dr. S. was so good, once again. She came into the room and really seemed to remember us and specifically, Kara. I showed her my spreadsheet that I update as we progress or regress and she seemed impressed. She commented that I seem to have a really good handle on how to do this! (Thanks fellow FPIES Mommies!) After we briefly went through how the last month has been she told us that she wants to scope Kara. I'm so glad she was insistent on doing this because I was going to ask her if she would, anyway. It would be so nice to know what is going on in her insides after all these gastro-disasters lately.

Dr. S. was very interested in hearing about the pear fail and is thinking that Kara probably has some sort of sugar intolerance on top of the multiple food allergies. They will be doing biopsies to see if we can determine what exactly is going on with that as well.

She had to have some lab work done as well as a few other preop things done and she did so well. She is such a good patient when she's getting checked out! The lab draws are obviously horrible but I just remind myself that she's more mad than anything because they numb her arms with emla cream 20 minutes before the blood draw so she really can't feel a hting. I'm getting stronger about holding her down for these - both physically and mentally! It was a long day and we were all tired when we got home but I was satisfied with what we found out.

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