Update

Well, we (obviously!) survived the tonsillectomy. The best thing I can say about the experience is that I'M SO HAPPY THAT WE NEVER HAVE TO DO THAT AGAIN. It was two really, really rough and sometimes scary weeks but it's over with and she's well healed from it.

We had Kara's post-op appointment last Friday. We opted to have the appointment here, in our hometown because she was back to eating and we knew she could hear just fine (Very well, in fact - she'd cover her ears at all sorts of sounds, like she'd never quite heard them that loud before!) The ENT at the U knows the ENT that travels to our local clinic and he had no problems with this so it saved us a day of travelling. His report was that her ears are CLEAR and DRY and that her throat looks great. We could FINALLY breath a sigh of relief to know that we got the procedure behind us.

Since I last blogged, life has been busy and we've been trying to enjoy summer. Kara is having some problems again, which we didn't anticipate, being that she was on mainly Neocate for over a week but yet she is far from baseline. We had a clinic appointment this week because of this missing baseline again. Her body is inflamed again. The visible is obvious by taking one look at her skin. The less obvious is showing us symptoms - the hacking cough, the urpies, gas, and icky, icky diapers. We see GI on the 20th and with that we are going to be seeing a dietitian as well. In the meantime, I am back to digging, trying to find a connection, trying to find some kind of specialist that can help us put all of these pieces together. I feel like we are back to square one, just waiting for that initial appointment.

I had  a mini-meltdown at Kara's appointment the other day. Bring it on, life, I'm one tough girl but the minute I get frustrated with something that I have no control over, I lose it. I started updating Kara's doctor about her last food fail, how she has never quite made it back to baseline from that, how I'm afraid there's more going on in her body than FPIES and I was reassured that we will get this figured out. If we don't get anywhere at her next appointment, then we'll look somewhere else. I'm determined to have my happy girl back.