Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Thursday, July 21, 2011

A Kara Story

Kara was determined that she was going to wear big girl underwear last night and did pretty well in them for a while. After supper, she had an accident so I put her in a diaper and put her pj’s on. Brian’s Mom was over playing with Brenna, I was busy doing something, and Kara was quiet, which isn’t totally out of the norm for her lately, I just figured she was playing nice back in Brenna’s bedroom. She came running out of the bathroom, through the house with the bowl to the potty chair “I PEED!” she said, so excited! I looked beyond her and saw the trail of liquid that she splashed along the way and looked at Cindy, who was desperately trying not to giggle as I questioned Kara. “You peed? But you have your jammies on! Where is your diaper?” I asked, pulling at her pj shorts to find her diaper on, just as I had left it. I started thinking, she’s too short to reach the sink, what the heck did she do? I lead her to the bathroom to clean up the “pee” that was on her and so she didn’t slip on the trail she left. We got to the bathroom and there was wet, soggy toilet paper all over the floor as well as the toilet and floor around it being soaked with water. This child is genius. She dipped her potty chair INTO the toilet to fill it up so that we’d think she peed in it. I was ABSOLUTELY HORRIFIED, not sure if I was going to bust out laughing or bawling in frustration with the situation!

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