Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Monday, April 11, 2011

Time to Blog

My head has been full lately. So full that at times, I'm not sure if I'm coming or going. I really need this attention deficit to settle because I have so many things that I need to do, or have started but then have become so overwhelmed with everyhing else that I do nothing instead. The news last week of Kara's formula being covered has allowed me to step back and take a deep sigh of relief. The rest of the week was spent relaxing, getting outside, going back to the things I used to love to do - crocheting, reading, playing outside, yard work, THANK YOU SPRING! It was a long winter and with the challenges we've had with Kara's health and I'm glad to see daylight again.

My list of blog posts in my head keeps growing, and growing and growing. I need to find the time again to keep this blog going. It's most important for me - it serves as a diary of sort, and a time line to look back on what happened and when it happend. I counted on this especially when working on the insurance appeal. My goal for the next few days is to catch up - we have a busy month of appointments and I need to get all of this other stuff documented before it all leaves me!

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