Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Monday, April 11, 2011

Another Reaction

Last week (last week? the week before? My days are all running together!) while the dispatch interviewer was here I made a few comments that stand out in my head. "Random reactions, episodes that will happen and we may never know what she got into; Sometimes it's day by day, other times it's hour by hour." She left and we made a quick dinner, eating later than usual.

Kara got a little fussy after dinner but it was late and she was out of her 5:00 dinner routine. Brian ran up to the fire hall to pick up some things as he usually does Monday evenings and I set a fussy Kara in the chair with Brenna to drink her bottle hoping she'd settle down. I had just sat down on the couch when Kara made this horrible, burping sound and Brenna jumped out of the chair faster than I would have though possible. Kara cried and I ran to get her. I sat down, holding her out as she vomited. It kept happening, over and over again. Brenna was crying, Brian was gone, my heart was racing. I don't know how long this lasted, it was probably pretty quick but I quick grabbed my phone and called Brian. No answer. I knew he was going to be at the hall for a while. Debated for 1/2 of a second to call 911 but then called my Mom, who lives a mile down the road. She answered, I said "Kara's puking, I need you." and hung up. Kara stopped throwing up and I started cleaning her up as my mom got to my house. She perked up quite a bit seeing her Nonna at her house, Brian got home and we go the floor all cleaned as Kara played and entertained. Again, we didn't need to bring her to the ER but her face was as white as a ghost through all of this and hours after and she had us on our toes, ready to run if needed.

We don't know for sure what caused this reaction but I have a slight suspicion that it was green beans. Beans aren't a common veggie that's eaten in our house and I don't remember the specifics of how long we trialed them. I'm afraid that this could be a build reaction, but unfortunately, the only way to know is to trial them again.

I hate this game.
Posted by at

1 comment:

  1. NicholeApril 12, 2011 at 10:34 PM

    :( ME TOO! I hate the game . So sorry. Poor Kara and mommy. How is she doing now?

    ReplyDelete

Subscribe to: Post Comments (Atom)