Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Sunday, April 3, 2011

Neocate Coverage: Two

I have our Neocate Junior Insurance Appeal ready to go in the mail tomorrow. Many events have been going on, on top of the procrastination of getting this done. I have been watching our supply of formula in the cabinet dwindle as Kara has been drinking a lot more formula lately from not feeling well, knowing that I HAVE to get this finished.

I wrote a letter, from the bottom of my heart, explaining what Kara has gone through from birth, to diagnosis, to today. I included all the letter that her family doctor wrote for us, her prescription, her ER letter, and all of her medical records from our clinic, hospital, allergists, and gastroenterologists. I also included some documents on FPIES, and copies of the MN State Senate info on amino acid formula coverage. I am keeping my fingers and toes crossed, praying and asking everyone else to do the same so we can get insurance coverage for her formula.
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2 comments:

  1. Mom of TwoApril 4, 2011 at 9:26 PM

    I will say extra prayers that this will get covered Kendall. One less struggle would truly be a blessing for you guys.

    ReplyDelete
  2. MalloryApril 7, 2011 at 11:52 AM

    Wonderful news!!! I can imagine how relieved/ecstatic you are that this has been completely taken care of!!

    ReplyDelete

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