Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Tuesday, March 15, 2011

Trying a Break

We've been busy since we've been home from vacation, but mostly, I've tried to take a break from everything and try and get our lives back to as normal as possible. Trying to get back to reading, crocheting, the things I used to love to do before I sat on the computer night after night once my girls went to bed - researching, chatting with other FPIES Moms, scouring FPIES message boards - anything I can do to find help for us and to help other Moms. It's become an addiction of sorts to do everything I could to become the best advocate I could for my daughter.

I've had blog posts brewing but the words haven't been able to come out right. The last two days have now been extremely challenging for us in the FPIES world and I feel the need to write about it - 1) to help me remember what we've went through, looking back 2) to help the next clueless Mom who comes along my blog when searching for answers to her little ones condition and 3) to update friends and family of what's going on at our house and with Kara.

I'm going to try and do this in two separate posts. We'll see if I get them all done tonight - we've had a pretty unhappy little girl on our hands the last few days.
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1 comment:

  1. NicholeMarch 15, 2011 at 8:01 PM

    hooray for breaks! oh NO for unhappy little girls :( Looking forward to more updates.

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