Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Wednesday, March 16, 2011

Night Owl

It's been a long night. When we went to bed last night, Kara was tucked in nicely, sleeping sound. I couldn't fall asleep so ended up being up until 11 which is WAYYYY past my bedtime on a "work night"! Around 12:30 I finally got up with Kara because I'd been listening to her fuss and cough more and more. She snuggled with me for a little while, I took her temp, and it was 100 degrees. Dang, looks like we're not going to have a better day today! I didn't give her Motrin right away for a few reasons - I wanted to see what this temp was going to do, figuring it'd hang right around there, and also because it seems to WIRE her so I really only use it in much needed situations!

We snuggled, but she couldn't seem to get comfortable. The time frame of my night is a big blur - she asked for a bottle so I made her one. She drank half of it and threw it all up. Luckily I caught it all in her blankey, but bye-bye blankey for the night! Within a short time after that, with increased irritability, coughing, the whole works, I noticed she was really burning up. I took her temp again and it jumped to 104.2! Crap! I panicked, getting Motrin in her ASAP. We battled trying to fall asleep for quite a while - in the chair, in the bed, in the crib, in a little bed on the floor, nothing worked. Eventually that Motrin kicked in and she climbed off my lap and decided to play with the dollhouse - with just the light of another room dimly shining in. As I type now, she's laying back down on the little bed I made her with Playhouse Disney on. I hope she crashes soon, it's 4 a.m. and I just don't trust a 21 month old roaming the house while everyone is sleeping so I'm doing my best to stay awake! I'm SOOO tired and I'll have a 3 year old up in a few hours and I'm sure, another clinic visit this morning.

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