A few weeks ago, this story was featured on abcnews.com. This was amazing recognition for the FPIES community and only the beginning of news stories written on FPIES families all over the country.
When this story appeared, I sent it to our local newspaper and let them know that our Kara suffers from the same thing and a little bit about FPIES. Shortly after I received an email asking me if I'd be interested in pictures and an interview.
Tonight was our interview. The girls seemed pretty fascinated, sitting right at the table with us as we talked, then my Mom came over for a distraction and took them up to play. I sat and told our story as the reporter took notes. Whew - we've had quite the battle when we started from the beginning!
The photographer got there and we went up to the toy room to see the girls. Kara was a ham for the camera. It was so cute! He took shots of Kara playing, Brenna and Kara, our family, seeming very interested in our story as well. We came back down and finished up our story. We were doing so well but the break totally made me lose my whole train of thought and I couldn't seem to get things together afterwards. I was so confident before then so I think it's all going to be ok.
I'm not sure what part she is going to really focus on our story, there is just so much to it now but I am so excited to see what she comes up with! She was shocked at our dismissal from physicians in the beginning calling this gastroenteritis! Oh, the things we've been through in this FPIES life! We found out that our story is going to be printed in a special section they do once in a while called "Health Watch" and should be out there around the end of April.
I'll keep ya'll posted! =)
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