Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Wednesday, February 9, 2011

Skin Care

Kara's eczema has gotten out of control. This is a picture of her ankle last night:


After some Benedryl last night she looked much better but by lunch time today it was back - ankles, arms, cheeks. It keeps her up in the night - her room is above ours so we hear all the kicking against the sides of the crib, the cries out, even though she's still half asleep. Poor baby has been irritable, miserable lately.

Luckily, I had a follow up appointment made for today. I was especially thankful after the flare up twenty minutes before the appointment today. We picked up a new prescription yesterday, a special cortizone cream, but I didn't want to use it until after we saw the doctor again today. After today's instructions from the doctor, we now have quite the array of creams and lotions for Kara's skin. Trying to keep this all straight after her bath was NOT an easy task!

Here is what we have now - these all need to go on her skin, every day, as needed. Some of them will be for a few days, others are just day to day care. Some spots are more prone to yeast (a problem we've dealt with since she was just tiny) and some spots are beginning to become infected.



Different strengths of cortizone, a topical antibiotic, moisturizers, a topical steroid, an antifungal and a barrier cream.How am I ever going to keep it all straight? Oh yeah, this is also on top of the benedryl for a few days, zyrtec and an oral antibiotic. = )

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