Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Sunday, February 13, 2011


One of Brian and I's favorite things to do was to go out to eat. Since Kara has started noticing that her food is different, this has been extremely difficult and our going to eat as a family has become non-existent.

Friday afternoon we were itching to get out of the house, and Brenna wanted pizza. We didn't have anyone to watch Kara and after much debating, I got online and started looking up ingredients. I found that Pizza Hut has one kind of dough that doesn't contain any dairy. I wasn't sure how their dough comes, or if it would even be a possibility, as their "personal pan pizza" dough does have dairy in it. I had the idea that maybe we could get a pizza made for Kara with a dairy free dough, some pizza sauce, and some ham.  I called the restaurant and talked to Sue. Sue told me absolutely, what she could do was make her a small, thin crust pizza, just for her, with whatever we felt would be safe for her. She explained how her grand-daughter has celiac so she understands how difficult these things can be. I got off the phone and felt instantly emotional. Really? She not only helped me with ALL the ingredients to make sure what we were going to give her was safe, but gave me suggestions and told me to ask for her when we got there! I could have cried! (I probably would have, had I been by myself!)

We headed into town and when we walked in we asked for her. She came right out, and since we were undecided on the rest of the order, she confirmed exactly what we needed for Kara, let us know that she'd get it put in right away, and told us we could help ourselves to the salad bar, for anything that Kara would be safe eating. We ordered our pizza and in the meantime, Kara's pizza came. We made a production over her getting her own pizza and she was grinning ear to ear. She had her own, probably 8 inch pizza, with a thin layer of sauce on it. We handed each piece to her and she bit into it like such a big girl. Feeding her has been difficult lately, as she's sick of the same old, each and every day. She ate half of the pizza and was in heaven with this new-found food!!! We had a wonderful family dinner outing and can't wait to do it again!!

Tonight, I went to the Pizza Hut website and wrote feedback of our amazing night at their Baxter location, recognizing Sue for going out her way to make our experience such a great one. I'm sure she doesn't realize what a big deal this was to us, but in the FPIES world, anything that can help make life, especially mealtime, easier, is an experience never forgotten.

***I forgot my phone in the car, so I got NO pictures of this. I know the memory of it will last in my head forever, and I'm smiling, and *maybe, just maybe* getting teary eyed thinking back on the experience. =)

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