Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Monday, December 27, 2010

Lip Smackers

We had an accidental ingestion today. We made it through the holidays and celebration after celebration of being around family, friends and lots of food and had no accidents. Today after work I was tired. The girls had been playing so nice with their new toys and Brenna went to the entryway to get one of her new toys out of the diaper bag. That is where she found THIS:













"Mom, I found this! This is from Kara's surgery!" Yep, it is. "Mom, they put this in Kara's mask so she could smell it and wouldn't be scared!" Yep, they did, and she proceeded to put some on. Next thing I know, Kara runs over to me, smelling like banana berry and the inside of it is completely dug out of it and gone. Great. A quick google search tells me that there is no dairy in it, which I figured but the ingredients list looks like this:

Castor oil, Beeswax, Cetyl Acetate, Candelilla Wax, Flavor/Fragrance, Polybutene, Sesame Oil, Ozokerite, Carnauba, Acetylated Lanolin Alcohol, Mineral Oil, and Hydrogenated Soy Glycerides

So, a quick look at the list tells me that between the castor oil and mineral oil, she's going to be pooping. Then I see the SOY word and start to wonder. This should let us know how bad the soy is going to be for her. A little more look into it tells me that hydrogenated soy glycerides is the end process of a reaction using soybean oil. Maybe it won't be so bad after all. I sure hope not. We've been doing so well lately and I was looking forward to starting a sunflower seed butter today as a trial!

Cross your fingers, cross your toes. I'll keep you posted! :)

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