Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Saturday, December 25, 2010

Food Trials

I have had total writers block lately - it seems my mind runs wild in the late hours of the night but once I sit down to post what I had been thinking about, nothing seems to come out right.
Kara passed eggs. She loves them. So far she's only had scrambled and can't get enough of them. Her cough still lags, regardless if she's had eggs in a few days or not, so that ruled out any sign of reaction. They are a complete pass!

The soy, oh soy. I'm not quite sure what to say on this one. There is such contradicting information regarding soy and FPIES. She SHOULDN'T react to because the soy oils and lecithin don't contain proteins (feel free to weigh in here, anyone!) but she's not quite at the baseline she'd been at for the last few months. There are plenty of kids who can't have soy at all, but probably just as many that can handle it as an oil. We've had fussiness, eczema outbreaks, barky coughs, icky diapers, but nothing to the extreme to pull it completely. I'm just waiting for a sign - something to definitely tell me either way that this is a pass or a fail. A build reaction, symptoms to go away, something to make me sure that soy is good or bad. Have I ever mentioned that I HATE this game?

Once our lives settle down again, after the holidays, I will start a plan for trials again and get back to spending hours in the grocery store for new options. We've just been way to crazy busy lately!

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