Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.
Saturday, December 11, 2010
Cardiology Update
We have had a crazy week so I apologize for not updating on Kara's cardiology appointment until today. She has a healthy heart, nothing notable on the ekg or the holter. What we decided is that Kara is VERY sensitive and what happened is that her EGD that she had done in October put some stress on her body and that's the way she reacted to that stress. When she was having her EKG done in the office, she was not pleased. She didn't fight at all, she was just terrified. I'd settle her a little, she'd look down and then cry again. During this process, her pulse was up over the 210 point so the doctor was able to see how fast and how high she gets up there. The fact that it goes right back down again once settled is the main thing, the most convincing that she is perfectly fine. (from a cardiology standpoint.) We were reassured that anytime she'd have any procedures done, if another EGD is needed, for example, we'd be in the right place if anythign were to happen. So, basically this is something she could go through at any time but at least we left there knowing there was no serious heart conditions.
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