Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Monday, August 16, 2010

Day Three!

We are on day three of feeling good! That awful, awful soy. I still kick myself about it but we made a major turn taking that out of her diet. We've been on day three before of good days only to be crushed hard soon after. Now that I've elimated that SOY out of her diet completely, and am confident that I'll never make that kind of mistake again, I have faith that we'll have good days at least until we start something new.
Kara had a bowl of corn pasta tonight. She ate it right up, was excited to have that to eat. I'm confident that she's going to do just fine on tonights meal. I think we are going to trial bananas next - bananas can be used as an egg substitute in baking so this will really open up some more options for us.
Our fail list is officially RICE, OAT, DAIRY, SOY.
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