Here We Go Again

Kara's been puffy lately. She got home from daycare Wednesday and it was the first think I noticed - she was puffy, pale and had dark circles under her eyes. No other symptoms besides those but really, she looked absolutely terrible. I called her GI office at the U that night and left a message with her primary's nurse yesterday morning. We also decided maybe we should pull beef from her diet as well.

Yesterday's menu was applesauce and potatoes. I also sent some corn to daycare. I got a message from our nurse, telling us that the doctor said to pull corn and that she wasn't sure what else to tell us, other than keep trying to get through at the U and wait for Cincinnati to come through. My heart sunk, I wasn't sure what to even think anymore. Pulling corn takes away kix, corn chex, corn pasta, all these staples that we started with and that we have resorted back to! What the heck can you really do with apple and potato? Grrrrrr...

I got home from work and let Brian know the suggestion and that I was also waiting for GI to call me. With that, I took Brenna to her first night of dance. Halfway through dance, my phone rang and it was Kara's "other" GI calling, the new one that we saw at the U a few weeks ago. We discussed everything that's gone on since we saw her last, Kara's rollercoaster of symptoms. How we pulled wheat, things got somewhat better, and how we had to pull the beef last night. With this, she strongly suggested we go with Plan B, which is something we had discussed at the last visit. Plan B is a Neocate only diet. ONLY. As in, it was hard enough to remove 15 foods from Kara's diet but now we need to remove EVERYTHING and rely on formula alone. On a 27 month old. GULP. She discussed with me how she wouldn't wish that upon anyone, understands that it's going to be one extremely difficult thing that we, as parents, will have to do, to deny our child food and hope that she understands, but it will be best. It sounds like Kara will be scoped at the end of all of this, we just need to give it a minimum of two weeks to see how she responds.

This doctor was so great on the phone. She talked to me like I was a real person and let me know that she understands how awful this could potentially be, and to definately keep them in contact for the next couple weeks and we'll decide from there what our next step was. I got off the phone with her and wanted to cry, but sucked it up and went back to watching my big girl dance.

We got home and Brian and I talked about this, trying to come to an agreement of what we need to do. I would LOVE and almost feel the NEED to keep some sort of solid in Kara's diet. KIX, a staple since she's been 9 months old, something, just for a little snack here and there. We need to decide what we are going to do, pick a day and do it. The sooner, the better, for Kara's sake.