This whole process of getting Kara in at Cincinnati Children's Hospital is moving in the tiniest little steps I've ever witnessed. We started this process well over a month ago and to date, we still don't have an appointment set.
Early last week I was informed that they finally connected with the U to get Kara's biopsy slides sent. I was notified that they were going to be Fed-Ex'd and then the next afternoon, notified again that they had been received. I had crossed my fingers and toes that they would be in the system in time for her case to be reviewed on Thursday, the reviewal day and on Thursday afternoon wrote an email asking if her case was on for that day, and if we could please have appointments set up by the end of the week so we didn't have to wait an extra week. I never received a reply.
This morning, I received an email from the pathology department letting me know they need insurance info and patient demographics before they can review the slides. Shaking my head, I emailed this info back and asked if the slides will be reviewed this week. The reply was yes, and it will take 2-3 days for this.
I am not a very patient person, I will be the first to admit this. When I want something done, I want it done now (!) and if it can't be done now, I want to know what I can do to help speed up the process. In this case, there is nothing I can do. I sent everything that I could to Cincinnati the first day that I made the initial phone call. I guess the good thing is that we have Kara's symptoms under control right now, even if she is on a Neocate-only diet. If she were crying in severe tummy pain like she was 3 weeks ago, it would be much more difficult to be patient and I would have given up on them by now, in search of another national hospital that could help. (that thought isn't entirely out of my head, either, at the snail pace we seem to be moving...)
So, we sit and wait. Another week goes by, hopefully by this Friday we'll know the date that we'll be travelling.
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