Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Sunday, August 28, 2011

Week in Review

Kara has been feeling really good the past few days. The lack of food in her diet has been very challenging as she's not really interested in eating anything anymore and has been pretty moody but I can handle that since we've been tummy-ache free. We've bumped up the amount of bottles she gets a day, basically, if she asks for one, she gets one. If she's fussy, we offer it.

She sees her doctor on Tuesday, a check up from the hospital stay two weeks ago. I'm interested to see if she's been maintaining her weight despite the lack of appetite.

We're still waiting to hear back from Cincinnati as far as a schedule goes, who she'll be seeing and what procedures she'll have done while we are there.

That's all I have for an update today. Short and sweet!

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