Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Wednesday, August 24, 2011

The First Dinner

We got home Monday night and it was time for dinner. Kara's meal was some beef, wheat pasta and some applesauce. Noodles (noo-noo's!) are her favorite. This child would eat noodles for breakfast, lunch and dinner if we let her. Easy enough, right? Well, she eats ketchup on nearly everything. EVERYTHING. (If you are thinking that that might be her tummy problems, tomato has been safe for a long time...and if you are "ewe-ing" at ketchup on noodles, ketchup on everything, it's not like she can load her pasta full of butter and other seasonings!) :)

Anyway, I brought her plate to her and she immediately asked for ketchup. My heart broke. I got down to her level "Kara, your tummy doctor said no more ketchup, sweetie. She said it might be making your tummy owie." "Oh! No owie tummy Mommy" is what Kara replied, rubbing her tummy. She took her plate and started eating it up like it was no big deal. Just before dinner Brian had a battle with Brenna at the grocery store about how she wasn't getting a treat that resulted in a major meltdown and then I had to take ketchup away from Kara, the one food (food?) that she loved in case it's causing her problems. Kinda puts things in perspective, doesn't it?

This is going to be a rough few weeks. Patience, patience, patience.

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