Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Wednesday, January 5, 2011

Sick Baby!

Kara has not been getting better. Poor baby! Her cough is awful, her nose is still running, she still looks sick. Today is Day Five for the antibiotics so I called the doctor today. She wondered why we were put on Augmentin, something so strong for her poor little digestive system, and told us to call it quits. Kara has an appointment on Friday morning with her, if she can make it that long, otherwise we'll see someone else tomorrow.
The augmentin is wreaking havoc on her body. Her bottom is so  raw, it actually bleeds when you wipe it. I got a call at work yesterday that both outfits were used from the diaper bag so to pack two for today, then today that all three were used. We've been caking her bottom with desitin, with a&d, with whatever idea I come up with each time. She is SO sensitive.
We are going in the wrong direction with the bottle. She won't eat so we are giving in to feeding her a bottle anytime she asks and anytime in between. Poor Kara gets so dehydrated so quickly and we've been down that road a few times in the past so I'm taking no chances of it happening again.
I guess we can add Augmentin to her list of non-tolerable meds. Last winter it was Zithromax, and that made her so sick, she had to be hospitalized. These are the only two oral antibiotics she's been on, and so far, two strikes. I'm hoping we can pull through this. Thank God she's been healthy since last winter!

2 comments:

  1. scary!!! i hope she gets better soon and that you can find an antibiotic for her that she can tolerate

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  2. Hope Kara is getting better!!! Thanks for the reply to my email. I appreciate you taking the time when you have some much going on right now :)

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