Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Saturday, January 29, 2011

Post Reaction

Yesterday Kara started the post reaction symptoms which reassures me that what happened the night before was an FPIES reaction and not just a fluke vomiting episode. Yesterday we noticed how her eyes were really puffy and her skin tone, very pale. Last night she started with that barking cough again that we just got rid of! We kept her diet very basic yesterday, backtracking to bottles again when we were just about ready to be done. I wanted to make sure she was hydrated and was scared to give her too much for food.

We have ruled out ham - that was the only food she had for dinner yesterday that she had the day before. I'm thinking that I'll have to try beef today for lunch to see if that was it. Very confusing, and scary to try any of those foods but we have to know. They seemed safe for so long. If she does fine with those few foods she had for dinner that night, than we'll have to settle with the idea that she got something she shouldn't have had, and that we'll never know what that was. I don't know what I'd feel better with!
Posted by at

2 comments:

  1. NicholeJanuary 29, 2011 at 9:47 AM

    ugh...the barking cough and the guessing game. All too familiar and all too SUCKY. Are you giving her grass fed beef??

    ReplyDelete
  2. KendallJanuary 30, 2011 at 8:36 PM

    No-I'm not doing any specialty foods to start with. Just a grocery store roast...
    She ate it like crazy tonight for supper, 1 1/2 hours and counting til she's at that dreaded 2 1/2 hour reaction mark!

    ReplyDelete

Subscribe to: Post Comments (Atom)