Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Friday, April 27, 2012

Caring Bridge

I have neglected this blog lately. We took a little break from everything and right about the time that we needed to get back to the doctors for follow ups, things started spiraling out of control.

Kara has recently been diagnosed with Grave's Disease, another auto-immune disorder, and with all of this, the appointments, the symptoms, the new medications, things have been very, very busy and very overwhelming for all of us.

I recently started a Caring Bridge website for Kara, for many reasons, to better track visitors, it's a little easier for me to get on and update, and so on. If you have been a follower of this blog, please continue following us at www.caringbridge.org/visit/karanelson1. It's FPIES, Grave's, IgA deficiency, IgE allergies, and whatever else comes up, all in one.

Maybe someday I will get back to this, but for now, it's going to be on caring bridge. Please drop in and see how we're doing, and leave us a message in the guestbook!
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