Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Sunday, October 30, 2011

Scope Update

Friday morning Abby called me. She realized that they had scheduled Kara at the outpatient surgery center in Minnetonka for her scope and because of Kara's history, she'd need to be scoped in the hospital and need to be kept over for observation. She was able to speak with Dr. Aru, who is actually going to be on hospital service this week, and he said he'd put her into the schedule. This actually works out great because he will be the doctor that will be following then, when she is there after the scope. She let me know that we wouldn't be able to meet him until the day of the scope, but that he'd be calling me later that day when he was done in surgery to further discuss.

Wow. In the last six months at the U we got nothing but the runaround and in one appointment with the new GI, we get what Kara needed, what the Allergist had been wanting, and it's goign to be done in under a week from the first appointment. Simply amazing.

Dr. Aru called around 5:00 on Friday. We spoke briefly about what's currently going on with Kara. He gave us the OK to start our next food, potato, if we wanted, but that was perfectly fine if we wanted to wait, too. It really didn't matter either way. He said scheduling will be calling us Monday morning and she will most likely be scoped Wednesday or Thursday morning.

Another busy week awaits us but as long as we have progress, I'll take it! :)

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