Kara was diagnosed with food protein induced enterocolitis syndrome (FPIES) in August of 2010. She has had many FPIES reactions and complications that have lead to numerous hospitalizations and specialist appointments. It was a huge sigh of relief to finally have some answers and a diagnosis, however we have to remind ourselves daily that this is a very serious disease and this is only the beginning of the long road we have in front of us.

Sunday, May 1, 2011

Third Times a Charm

Because two doctor appointments weren't enough for this week, we went in for a third on Friday.

Kara was pretty fussy when we got back to reality on Tuesday night and her crankiness continued through the rest of the week. We kept it in the back of our heads that she had that fluid in her ear and by Thursday night I was ready to bring her to Urgent Care because she was SOOOO crabby. She wasn't acting sick just really ornery and wanting to be held. I was planning on going to work on Friday to make up some time, but plans changed, as they often do at the spur of the moment lately.

Kara was up all night coughing Thursday night. I felt so bad because it's such a nasty, dry cough and it sounds so painful. Before she had even woken up, I decided it was time to bring her in and that we wouldn't be following with our plans for the day. We got an appointment right away Friday morning, and with that, found that Kara now has an ear infection in both ears. Her cough is a nasty, inflammation cough. We are keeping up with her nebs, the albuterol and budesonide (Pulmicort) and she is actually asking to take them, like she is finally noticing that they help her out and aren't just there for us to torture her with. It's kind of sad, in a way, but much easier than the two of us trying to hold her down to Neb her!

Kara is now back on Amoxicillin. So far it's going decent, just causing some slight gut issues and I'm hoping that we can continue it. We are aiming for ten days but need to get a full five in her for sure and hope that it clears the infection. By this afternoon she seems to be feeling better so hopefully she doesn't slide into a GI reaction and spend the rest of the week sick after one day of ear improvement!

When it rains around here, it pours.

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