tag:blogger.com,1999:blog-5858762454137586939.post1661712885288003957..comments2022-10-28T02:50:08.747-05:00Comments on The FPIES of Our Lives: Disgusted.Kendallhttp://www.blogger.com/profile/11328250322553186025noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5858762454137586939.post-79968716811335165842010-08-25T14:12:00.548-05:002010-08-25T14:12:00.548-05:00Oh my gosh Kendall, we ALL seem to be at the same ...Oh my gosh Kendall, we ALL seem to be at the same spot right now. Disgusted. I'm about to post on Ginny's blog with incredibly similar frustrations. We all need to get grants to start an FPIES clinic somewhere here in the Midwest. Grrr.....Mom of Twohttps://www.blogger.com/profile/13664317806307828247noreply@blogger.comtag:blogger.com,1999:blog-5858762454137586939.post-78994560646662181032010-08-23T22:01:55.750-05:002010-08-23T22:01:55.750-05:00I hear ya! Why don't you talk to your administ...I hear ya! Why don't you talk to your administration? They need to hear it from somebody, don't they??? <br />Dang it Joy. I was REALLY hoping you'd have good things to say so I could jump in the car and bring Kara down there.Kendallhttps://www.blogger.com/profile/11328250322553186025noreply@blogger.comtag:blogger.com,1999:blog-5858762454137586939.post-78703114389790384762010-08-23T21:51:38.720-05:002010-08-23T21:51:38.720-05:00Isn't it amazing we are going through the same...Isn't it amazing we are going through the same things. Disgusted is a good title for a blog post for me tonight too but I am so disgusted I can't even post anything! <br /><br />This is exactly what I want- support. Support from the medical community to help me care for my sick child. So that when I call because I am concerned about him, they know to call right back- or get him in for an appt. I just ask for a tiny bit of support....I'm doing everything else my gosh darn self- why can't I at least get that? <br />Instead I get to sit and argue, for the BILLIONITH time about his symptoms or his intolerances or their distrust in our Allergist....<br /><br />It is nothing but ridiculous and I am wondering if our Administration would be curious to know how a child with a chronic illness is treated by the specialists here? <br /><br />Ugh! <br /><br />Sorry, that isn't supportive- just echoing your frustration!Joyhttps://www.blogger.com/profile/05801049405099115795noreply@blogger.com